日韩精品久久一区二区三区_亚洲色图p_亚洲综合在线最大成人_国产中出在线观看_日韩免费_亚洲综合在线一区

Global EditionASIA 中文雙語Fran?ais
Lifestyle
Home / Lifestyle / People

Changing perceptions

By Zhang Zefeng | China Daily | Updated: 2017-11-29 10:26
Share
Share - WeChat

 

Yan Xiao takes photos and makes short films to capture the life of people with rare diseases. [Photo provided to China Daily]

 

Digital documentation

People who have rare diseases often require assistance from family or friends in their daily lives.

For Yan Xiao, 24, shopping with friends was always a physically demanding task. It could take her a few days to recover from a short bike ride. At school, she spontaneously fell asleep, despite the fact she was interested in her classes.

In 2012, Yan was diagnosed with myasthenia gravis, a type of autoimmune disorder that causes intermittent muscle weakness, fatigue and sometimes difficulty maintaining a steady gaze.

"I have limited energy and always suffer from fatigue," she says. "It's a type of incomprehensible fatigue. You feel like you are going to die if you don't take some rest."

Yan majored in sociology in college. She understands the importance of raising public awareness about rare diseases.

"Many social issues, including health problems, are derived from the inadequate understanding of certain groups," she says. "I wanted to do something to enhance public awareness."

With her younger cousin, Wang Sai, who studied video production, Yan makes short movies and documentaries about rare diseases.

"Yan gets tired easily, and I can offer her some help. What she wants to do is also very meaningful," says Wang, a 23-year-old graduate from the Nanjing Institute of Visual Arts.

In 2015, when they heard about hemophilia patients having difficulty receiving education and getting jobs, they made a short film, Interviewee, to raise public awareness. They later made another one, The Moon Represents My Heart, to address the love and marriage issues among albinism patients.

In the past two years, despite facing physical, technical and financial challenges, Yan and Wang have made 17 short movies and documentaries covering diseases such as brittle bone disease and Kallmann syndrome.

Yan says she has also entered a more diverse world after being diagnosed with myasthenia gravis. Through filming, she has gotten to know the marginal groups in society, which includes people with disabilities, and Yan and her cousin plan to document people beyond those with rare diseases.

|<< Previous 1 2 3 4 Next   >>|
Most Popular
Top
BACK TO THE TOP
English
Copyright 1995 - . All rights reserved. The content (including but not limited to text, photo, multimedia information, etc) published in this site belongs to China Daily Information Co (CDIC). Without written authorization from CDIC, such content shall not be republished or used in any form. Note: Browsers with 1024*768 or higher resolution are suggested for this site.
License for publishing multimedia online 0108263

Registration Number: 130349
FOLLOW US
 
主站蜘蛛池模板: 精品96久久久久久中文字幕无 | 天天摸天天添 | 亚洲成人福利在线观看 | 午夜欧美 | 欧美二区视频 | 偿还的影视高清在线观看 | 黄页成人免费网站 | 一区二区av | 国产精品成人va在线观看入口 | 日韩三级免费 | 免费xxxx日本大片在线观看 | 欧美zozozo人禽交免费观看 | 亚洲精品午夜国产va久久成人 | 久久精品伊人网 | 国产精品毛片无码 | 日本黄色不卡视频 | 刮伦人妇A片1级 | 欧美a级成人淫片免费看 | 国产欧美精品在线 | 亚洲高清视频在线 | 小明成人永久视频在线观看 | 精品日本三级在线观看视频 | 奇米影视欧美 | 久久极品| 狠狠躁躁夜夜躁波多野结依 | 国产99久久久久久免费看 | 无码免费人妻A片AAA毛 | 久久国内精品 | 青娱乐在线免费 | 欧美日屁| 麻豆精品传媒一二三区在线视频 | 午夜精品一区 | 特级全黄 | 亚洲综合日韩 | 九九热中文字幕 | 天天做天天添天天谢 | 欧美精品v国产精品v日韩精品 | 国产精品久久久久久久久久免费 | 欧美一区二区大片 | 亚洲一区二区三区视频 | 亚洲欧美日韩中文字幕在线不卡 |