日韩精品久久一区二区三区_亚洲色图p_亚洲综合在线最大成人_国产中出在线观看_日韩免费_亚洲综合在线一区

Global EditionASIA 中文雙語Fran?ais
China
Home / China / Health

Recognition of rare diseases to boost diagnosis, treatment

By WANG XIAOYU | China Daily | Updated: 2023-09-26 09:28
Share
Share - WeChat
[Photo/IC]

86 new conditions added to national list, with 207 officially recognized in total

China has added 86 conditions to its national list of rare diseases, strengthening the diagnosis and treatment capability of medical practitioners, and providing wider scope for the development of related drugs.

Released by the National Health Commission and five other government departments on Wednesday, the updated list comes five years after the country published its first list containing 121 diseases and brings the total number of cataloged rare diseases in the country to 207.

There are nearly 10,000 types of rare diseases worldwide, with 80 percent of them being genetic and almost half affecting children, according to experts.

In China, about 20 million people live with rare diseases and 200,000 people are newly diagnosed each year. Getting a disease on the national list is a starting point for gaining momentum in creating better diagnostics and therapies, expanding insurance coverage and generating public awareness and concerted efforts.

Yang Min began experiencing the symptoms of pemphigus — a disease that causes the blistering of the skin and mucous membranes throughout the body such as the inside of mouth and nose — in 2015.

"When I saw the name of the disease was on the second national list, I was so happy and felt like I finally saw hope," she said. "I hope that reimbursement policies for the disease's treatment will be rolled out as soon as possible."

Songsongba, pseudonym of the father of a 13-year-old boy with West syndrome — a type of epilepsy that develops in infants — said that putting the disease on the list means that heightened attention has been directed to patients like his son.

"In the past dozen or so years, there have been no major breakthroughs in treating epilepsy in infants and many children are unable to control seizures after years of treatment, and as a result suffer impairment in motor and cognitive development," he said.

"With the disease's placement on the national list we are looking forward to more favorable policies in diagnosis and treatment, drug development and accessibility, medical reimbursement and rehabilitation services in the future," he added.

Li Linkang, executive director of the China Alliance for Rare Diseases, said that the second national list will help strengthen doctors' understanding of these rare diseases.

Relevant diagnosis and treatment protocols and training courses will be rolled out to advance research into diseases and nurture more medical professionals in these fields, he said.

Giving prompt and accurate diagnoses and delivering effective treatment have been a major challenge in tackling rare illnesses.

Zhang Shuyang, president of Peking Union Medical College Hospital, said during an academic conference on Saturday that nearly 73 percent of patients with rare diseases had experienced misdiagnoses. On average, it takes 4.3 years and visits to about three different hospitals to eventually obtain an accurate diagnosis for these patients.

She added that 32.1 percent of doctors have never diagnosed a rare illness.

Zhang said that efforts are underway to build a national system to cope with rare diseases, such as selecting over 320 hospitals nationwide to form a network to cooperate in diagnosing and delivering treatment, and setting up relevant databases and specimen repositories.

The direct reporting system for rare diseases has now collected 780,000 rare disease cases, she added.

Top
BACK TO THE TOP
English
Copyright 1995 - . All rights reserved. The content (including but not limited to text, photo, multimedia information, etc) published in this site belongs to China Daily Information Co (CDIC). Without written authorization from CDIC, such content shall not be republished or used in any form. Note: Browsers with 1024*768 or higher resolution are suggested for this site.
License for publishing multimedia online 0108263

Registration Number: 130349
FOLLOW US
 
主站蜘蛛池模板: 久久机热综合久久国产 | 成人免费看黄网站yyy456 | 免费观看性欧美大片无片 | 久久久久国产成人精品亚洲午夜 | 王骏迪的个人资料 | 亚洲美女精品 | 欧美资源在线观看 | 久久只有这里有精品 | 婷婷精品 | 日日骚| 国产噜噜在线视频观看 | 91成人影院 | 久久精品小视频 | 国产成人精品.一二区 | 日本午夜看x费免 | 欧美顶级毛片在线播放 | 亚洲草原天堂 | 5月激情网 | 高清国语自产拍免费视频国产 | 婷婷国产成人精品视频 | 李旭个人资料及简介 | 黄色片的网站 | 新神奇四侠免费完整版在线观看 | 久久伊99综合婷婷久久伊 | 奇米影视888狠狠狠777不卡 | 国产日韩欧美 | 性做久久久 | 美女被网站大全在线视频 | 国产一区二区三区久久 | 天天做天天爱天天爽综合区 | 国产成年网站 | 欧美中文字幕在线播放 | 鲁一鲁综合 | 亚洲欧洲一区二区 | 亚洲综合色视频在线观看 | 日韩乱轮 | 亚洲最大成人综合 | 午夜免费小视频 | 香蕉av777xxx色综合一区 | 色开心婷婷 | 日本中文字幕网站 |